Cooper had a friend spend the night Friday. On Sunday we went to Mass and then out to lunch. In the afternoon Cooper went to Youth Group and we then went to friends for dinner.
Cooper went back to school Monday and again on Tuesday and is doing really well. He was so happy to have a few normal days.
Tomorrow we go back to KC to have stitches removed and CT scan to check on the shunt.
He plans on being in school Thursday and Friday before having to go Monday to begin radiation treatments.
love,
rsc
Tuesday, March 3, 2009
Saturday, February 28, 2009
Latest
The Cancer Center called and Cooper will begin radiation treatments Monday, March 9 and should be done with last treatment April 22.
Friday Sherry took Cooper up to school - a serendipitous visit because they just happened to be taking a class picture for the year book. So Cooper got to be in it! Sherry said all the kids and teachers were thrilled to see him. We hope to have him in school next week for a few days before having to "move to KC" for a month and a half for radiation.
with much love
rsc
Friday Sherry took Cooper up to school - a serendipitous visit because they just happened to be taking a class picture for the year book. So Cooper got to be in it! Sherry said all the kids and teachers were thrilled to see him. We hope to have him in school next week for a few days before having to "move to KC" for a month and a half for radiation.
with much love
rsc
Friday, February 27, 2009
Back Home Again
Well we are back after another trip to KC. All good this time.
Wednesday afternoon Cooper did 4 hours of cognitive tests to be used as a baseline for future reference after radiation treatments etc to check for decrease in cognitive ability.
Thursday morning we took him to the ophthalmologist. He has 20/20 vision but does have some permanent loss of peripheral vision on the left side.
We then went across town to the Kansas City Cancer Center in Overland Park to see the radiation oncologist. She explained the radiation treatments. He will receive 33 treatments of Intensity-Modulated Radiation Therapy. (here is a website with some info about IMRT http://www.radiologyinfo.org/en/info.cfm?PG=imrt ) Treatments will be at the KCCC in OP, M-F and will last about 6 1/2 weeks. Hopefully we will begin treatments by end of next week.
During treatment we will mostly likely stay at Hope Lodge in KC. It is kind of like a Ronald McDonald House but is only for cancer patients. Here is info about the one in KC http://www.cancer.org/docroot/subsite/hopelodge/MO_KansasCity/kc_index.asp
Also next week we go back to see neurosurgeon to have stitches removed from surgery to insert shunt and a CT scan to check on the shunt.
Cooper has been feeling quite well and in very good spirits since the shunt was inserted and seems to be getting stronger each day.
with love,
rsc
Wednesday afternoon Cooper did 4 hours of cognitive tests to be used as a baseline for future reference after radiation treatments etc to check for decrease in cognitive ability.
Thursday morning we took him to the ophthalmologist. He has 20/20 vision but does have some permanent loss of peripheral vision on the left side.
We then went across town to the Kansas City Cancer Center in Overland Park to see the radiation oncologist. She explained the radiation treatments. He will receive 33 treatments of Intensity-Modulated Radiation Therapy. (here is a website with some info about IMRT http://www.radiologyinfo.org/en/info.cfm?PG=imrt ) Treatments will be at the KCCC in OP, M-F and will last about 6 1/2 weeks. Hopefully we will begin treatments by end of next week.
During treatment we will mostly likely stay at Hope Lodge in KC. It is kind of like a Ronald McDonald House but is only for cancer patients. Here is info about the one in KC http://www.cancer.org/docroot/subsite/hopelodge/MO_KansasCity/kc_index.asp
Also next week we go back to see neurosurgeon to have stitches removed from surgery to insert shunt and a CT scan to check on the shunt.
Cooper has been feeling quite well and in very good spirits since the shunt was inserted and seems to be getting stronger each day.
with love,
rsc
Friday, February 20, 2009
Home Again!
We are home!
Cooper is doing great - a bit of pain in his abdomen where the incision is - but that is normal.
He will go next week to finally meet with radiologist oncologist about radiation treatments.
In two weeks he will go back to neurosurgeon to have stitches removed and a CAT scan to check on the shunt.
Another hurdle cleared and on track to kick cancer's butt.
Have a great weekend.
love to all,
rsc
Cooper is doing great - a bit of pain in his abdomen where the incision is - but that is normal.
He will go next week to finally meet with radiologist oncologist about radiation treatments.
In two weeks he will go back to neurosurgeon to have stitches removed and a CAT scan to check on the shunt.
Another hurdle cleared and on track to kick cancer's butt.
Have a great weekend.
love to all,
rsc
Thursday, February 19, 2009
post op
Cooper is back!
After two weeks of headaches, nausea and vomiting -Cooper is back to feeling like himself.
After being brought back to his room he has not been asleep, has not become nauseated, not taken any pain meds.
He has logged on to the computer, texted his friends, had a couple of visitors, eaten spaghettios, and drank Dr Pepper.
He said the incision sites are a little sore but that's all and is ready to go home.
He is such a champ.
with thankful hearts,
rsc
After two weeks of headaches, nausea and vomiting -Cooper is back to feeling like himself.
After being brought back to his room he has not been asleep, has not become nauseated, not taken any pain meds.
He has logged on to the computer, texted his friends, had a couple of visitors, eaten spaghettios, and drank Dr Pepper.
He said the incision sites are a little sore but that's all and is ready to go home.
He is such a champ.
with thankful hearts,
rsc
surgery update
Dr. just came in - surgery is done. He put in a shunt that will drain the fluid to his abodomen.
An incision in his stomach will be more to recover from than the head incision.
We do not know how long the shunt will have to be in. Dr said fluid was clear but they will send off to pathology to be sure cancerous cells aren't be drained off to other parts of his body.
This of course has delayed the treatment scehdule and will have to wait and see when we will be able to move on to radiation.
thank you for all your prayers,
with love,
rsc
An incision in his stomach will be more to recover from than the head incision.
We do not know how long the shunt will have to be in. Dr said fluid was clear but they will send off to pathology to be sure cancerous cells aren't be drained off to other parts of his body.
This of course has delayed the treatment scehdule and will have to wait and see when we will be able to move on to radiation.
thank you for all your prayers,
with love,
rsc
surgery
They have taken Cooper to surgery to drain off the fluid and relieve the pressure. Dr. was not yet sure what type of shunt or drain he would use until he got in.
Will update as we can.
rsc
Will update as we can.
rsc
Subscribe to:
Posts (Atom)
